WORKING STATUS AMONG PATIENTS WITH RHEUMATIC DISEASES IN BRAZIL

WORKING STATUS AMONG PATIENTS WITH RHEUMATIC DISEASES IN BRAZIL

FREITAS, ÁLVARO LUIZ TEIXEIRA DE; DÁVILA, ANA CLARA AGUIAR; CHAVES, MARYANE PLETZ CORTES; CARVALHO, NIELS VINÍCIUS PÁDUA; LUNDGREN, THAÍS FARAH; FIGUEIREDO, CÁTIA; SIMÃO, ANA GEÓRGIA; SOUZA, ALESSANDRA DE; PADUELLO, ANA LÚCIA; SILVA, ENI MARIA DA; AZEVEDO, MARTA; TENORIO, CARLOS EDUARDO; OLIVEIRA, SAMUEL DE; SILVA, PRISCILA TORRES DA; KACHE, CHRISTOPHER DOUGLAS; MIYAMOTO, SAMIRA TATIYAMA; CHU, BRUNA BURKO ROCHA; PURIM, KÁTIA SHEYLLA MALTA

Pôster:

Patients with rheumatic diseases often suffer from intense pain, morning stiffness, and eventual loss of mobility and joint deformity. Therefore, there’s a significant impact on patients’ productivity, which implies in negative consequences to their employability. This is relevant to the patient, their families and society itself. The purpose of this study is to describe rheumatic patients working status, and whether they’re benefitting from the disabled laws or social security.

Materials and methods

An anonymous web-based questionnaire through Google Forms was publicly available for 4 months in 2018. Social media and rheumatic disease blogs were used to promote the survey. Patients self-reported demographic data, information regarding their disease and treatment, as well as their work situation, and if their mobility was decreased. Data collected were exported to Microsoft Excel and statistical analysis was performed using IBM-SPSS.

Results

2030 people answered the online survey claiming to be rheumatic patients. Table 1 shows their current job situation. Most of the patients claimed to be working on regular jobs. 9.6% benefit from social security disability and only 1.72% work through disabled laws. 61% claimed to have decreased mobility.

Conclusion

Intervention in the course of rheumatic diseases helps to minimize sequelae and to reduce disability rates. However, when this is not achieved, rheumatologic patients live with limitations that often demand rehabilitation or even withdrawal from the job market. This initial observation suggests that unemployment rate for this population is high and that few patients are benefiting from work-disabled laws.

Patients with rheumatic diseases often suffer from intense pain, morning stiffness, and eventual loss of mobility and joint deformity. Therefore, there’s a significant impact on patients’ productivity, which implies in negative consequences to their employability. This is relevant to the patient, their families and society itself. The purpose of this study is to describe rheumatic patients working status, and whether they’re benefitting from the disabled laws or social security.

Materials and methods

An anonymous web-based questionnaire through Google Forms was publicly available for 4 months in 2018. Social media and rheumatic disease blogs were used to promote the survey. Patients self-reported demographic data, information regarding their disease and treatment, as well as their work situation, and if their mobility was decreased. Data collected were exported to Microsoft Excel and statistical analysis was performed using IBM-SPSS.

Results

2030 people answered the online survey claiming to be rheumatic patients. Table 1 shows their current job situation. Most of the patients claimed to be working on regular jobs. 9.6% benefit from social security disability and only 1.72% work through disabled laws. 61% claimed to have decreased mobility.

Conclusion

Intervention in the course of rheumatic diseases helps to minimize sequelae and to reduce disability rates. However, when this is not achieved, rheumatologic patients live with limitations that often demand rehabilitation or even withdrawal from the job market. This initial observation suggests that unemployment rate for this population is high and that few patients are benefiting from work-disabled laws.

Palavras-chave:

DOI: 10.5151/sbr2019-631

Referências bibliográficas

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Como citar:

FREITAS, ÁLVARO LUIZ TEIXEIRA DE; DÁVILA, ANA CLARA AGUIAR; CHAVES, MARYANE PLETZ CORTES; CARVALHO, NIELS VINÍCIUS PÁDUA; LUNDGREN, THAÍS FARAH; FIGUEIREDO, CÁTIA; SIMÃO, ANA GEÓRGIA; SOUZA, ALESSANDRA DE; PADUELLO, ANA LÚCIA; SILVA, ENI MARIA DA; AZEVEDO, MARTA; TENORIO, CARLOS EDUARDO; OLIVEIRA, SAMUEL DE; SILVA, PRISCILA TORRES DA; KACHE, CHRISTOPHER DOUGLAS; MIYAMOTO, SAMIRA TATIYAMA; CHU, BRUNA BURKO ROCHA; PURIM, KÁTIA SHEYLLA MALTA; "WORKING STATUS AMONG PATIENTS WITH RHEUMATIC DISEASES IN BRAZIL", p-631-631. In: Anais do 36º Congresso Brasileiro de Reumatologia. [ISBN 978-85-212-1892-0]. São Paulo: Blucher, 2019.
ISSN 23577282, DOI 10.5151/sbr2019-631